Resumo
The objective of this article was to know the findings about the quality of life (QL) in surviving patients through the review of empirical studies published in the period from 2012 to 2017 in the databases of Sciencedirect and Proquest. A documentary descriptive study was conducted, in which the following words were used as search descriptors: quality of life, ictus, and ACV were used for the research. 1679 articles were initially identified, 44 of those were selected based on their fulfillment of the inclusion criteria. The articles were analyzed according to the methodological design, the characteristics of the participants, the measurement instruments, the main results obtained and the limitations reported. A total of 44 studies were found, o 97% were quantitative, with the observational cross-sectional design with the most prevalent relational scope. The main issue addressed in the studies was the factors associated with CV; being functionality, neurological status and depression, the most reported predictive variables. It is expected that in the future, the research about the (this) topic will be made through mixed investigation or with observational, longitudinal designs, that include participants younger than 18; will perform evaluations (assessments) with specific scales, and will delve into the effect of cognitive and psychological variables, and care process in the life quality.
Referências
Aguilar, H., Olivera, J., Benabarre, S., & Pelegrín, C. (2009). Psicopatología del accidente cerebrovascular: el estado de la cuestión. Psicogeriatría, 1, 23-35. https://www.viguera.com/sepg/pdf/revista/0101/0101_23_35.pdf
Andrew, N. E., Kilkenny, M. F., Lannin, N. A., & Cadilhac, D. A. (2016). Is health-related quality of life between 90 and 180 days following stroke associated with long-term unmet needs? Quality of Life Research, 25(8), 2053-2062. http://dx.doi.org/10.1007/s11136-016-1234-5
Baumann, M., Lurbe, K., Leandro, M., & Chau, N. (2012). Life satisfaction of two-year post-stroke survivors: Effects of socio-economic factors, motor impairment, newcastle stroke-specific quality of life measure and world health organization quality of life - bref of informal caregivers in luxembourg and a rural area in portugal. Cerebrovascular Diseases, 33(3), 219-30. http://dx.doi.org//10.1159/000333408
Bernal, C. (2010). Metodología de la investigación. administración, economía, humanidades y ciencias sociales. Editorial Pearson
Boosman, H., Passier,P., Visser-Meily, J.M., & Rinquel, G. (2010). Validation of the Stroke Specific Quality of Life scale in patients with aneurysmal subarachnoid haemorrhage. Journal of Neurology, Neurosurgery & Psychiatry, 81, 485-489. http://dx.doi.org/10.1136/jnnp.2009.184960
Bradford–Hill, A. (1992). Ambiente y enfermedad: ¿asociación o causación? Boletín de la Oficina Sanitaria Panamericana, 113, 233–242. http://www.redalyc.org/articulo.oa?id=21419850015
Carod, F. (2004). Escalas específicas para la evaluación de la calidad de vida en el ictus. Revista de Neurología, 39 (11), 1052-1062. http://www.sld.cu/galerias/pdf/sitios/rehabilitacion/calidad_ictus.pdf
Castellanos, F., Hernández, J., Zurdo, M., Rodríguez, B., García C., et al., (2012). Trastornos psicopatológicos y calidad de vida en el infarto cerebral. Neurología, 27(2), 76-82, http://dx.doi.org/10.1016/j.nrl.2011.04.004
Chaiyawat, P., & Kulkantrakorn, K. (2012). Effectiveness of home rehabilitation program for ischemic stroke upon disability and quality of life: A randomized controlled trial. Clinical Neurology and Neurosurgery, 114(7), 866-70. http://dx.doi.org/10.1016/j.clineuro.2012.01.018
Chou, C. (2015). Determinants of the health-related quality of life for stroke survivors, Journal of Stroke and Cerebrovascular Diseases, 24(3), 655-662. http://dx.doi.org/10.1016/j.jstrokecerebrovasdis.2014.10.022
Chuluunbaatar, E., Chou, Y.J., & Pu, C. (2016). Quality of life of stroke survivors and their informal caregivers: A prospective study. Disability Health Journal, 9(2), 306-12. http://dx.doi.org/10.1016/j.dhjo.2015.10.007
Cicerone, K.D., Dahlberg, C., Malec, J.F., Langenbahn, D.M., Felicetti, T., Kneipp, S., Ellmo, W., Kalmar, K., Giacino, J., Harley, J.P., Laatsch, L., Morse, P.A., & Catanese J. (2005). Evidence-based cognitive rehabilitation: updated review of the literature from 1998 through 2002. Archives of Physical Medicine and Rehabilitation, 86, 1681-1692. http://dx.doi.org/10.1016/j.apmr.2005.03.024
Cortez, M., Wilder, M., McFadden, M., & Majersik, J. (2014). Quality of life after intra-arterial therapy for acute ischemic stroke. Journal of Stroke and Cerebrovascular Diseases, 23(7), 1890-1896 http://dx.doi.org/10.1016/j.jstrokecerebrovasdis.2014.02.012
Cramm, J. M., Strating, M. M., H., & Nieboer, A. P. (2012). Satisfaction with care as a quality-of-life predictor for stroke patients and their caregivers. Quality of Life Research, 21(10), 1719-25. http://dx.doi.org/10.1007/s11136-011-0107-1
Crichton, S. L., Bray, B. D., McKevitt, C., Rudd, A. G., & Wolfe, C. D. A. (2016). Patient outcomes up to 15 years after stroke: Survival, disability, quality of life, cognition and mental health. Journal of Neurology, Neurosurgery and Psychiatry, 87(10), 1091-1098. http://dx.doi.org/10.1136/jnnp-2016-313361
Cruz-Cruz, C., Martinez-Nuñez, J., Perez, M., Kravzov-Jinich, J., Ríos-Castañeda, C., & Altagracia-Martinez, M. (2013). Evaluation of the Stroke-Specific Quality-Of-Life (SSQOL) scale in México: a preliminary approach. Value in Health Regional Issues, 2(3), 392-397. http://dx.doi.org/10.1016/j.vhri.2013.04.002
Cumming, T., Brodtmann, A., Darby, D., & Bernhardt, J. (2014). The importance of cognition to quality of life after stroke. Journal of Psychosomatic Research, 77(5), 374-379. http://dx.doi.org/10.1016/j.jpsychores.2014.08.009
Dąbrowska-Bender, M., Milewska, M., Gołąbek, A., Duda-Zalewska, A., & Staniszewska, A. (2017). The impact of ischemic cerebral stroke on the quality of life of patients based on clinical, social and psychoemotional factors. Journal of Stroke and Cerebrovascular diseases, 26(1), 101-107 http://dx.doi.org/10.1016/j.jstrokecerebrovasdis.2016.08.036
De Lima, M., Ferreira, J., Okino, N & Pereira, L. (2014). Quality of life of individuals with stroke and their caregivers in a city of Triângulo Mineiro. Revista brasileña de epidemiología., 17(2), 453-64 http://dx.doi.org/10.1590/1809-4503201400020013ENG
De Souza, A., da Costa Rocha, M., Teixeira, A., Dias, J., Pereira de Sousa, L., & Pereira, M. (2012). Depressive symptoms and disability in chagasic stroke patients: Impact on functionality and quality of life. Journal of the Neurological Sciences, 324 (1–2), 34-37 http://dx.doi.org/10.1016/j.jns.2012.09.022
Guajardo, V., Terroni, L., de Freitas, M., dos Santos, M., Tinone, G., Scaff, M., Losifescu, D., Souza, M., & Fraguas, R. (2015). The influence of depressive symptoms on quality of life after stroke: a prospective study. Journal of Stroke and Cerebrovascular Diseases, 24(1), 201-209. http://dx.doi.org/10.1016/j.jstrokecerebrovasdis.2014.08.020
Dhamoon, M. S., McClure, L. A., White, C. L., Lakshminarayan, K., Benavente, O. R., & Elkind, M. S. V. (2015). Long-term disability after lacunar stroke: Secondary prevention of small subcortical strokes. Neurology, 84(10), 1002–1008. http://dx.doi.org/10.1212/WNL.0000000000001331
Durá, M., Molleda, M., García, C., Mallol, J., Calderon, V. (2011). Factores pronósticos en el ictus. De la fase aguda a los tres años. Rehabilitacion, 45(1) 18-23. http://dx.doi.org/10.1016/j.rh.2010.09.004
Ellis, C., Grubaugh, A., & Egede, L. (2013). Factors associated with sf-12 physical and mental health quality of life scores in adults with stroke. Journal of Stroke and Cerebrovascular Diseases, 22(4), 309-317. http://dx.doi.org/10.1016/j.jstrokecerebrovasdis.2011.09.007
Elsevier. (2020). Qué es ScienceDirect. https://es.qwe.wiki/wiki/ProQuest
Espárrago, G., Castilla-Guerra, L., Fernández, M., Ruiz, S., & Jiménez, M. (2015). Depresión post ictus: una actualización. Neurologia, 30, 23-31, http://dx.doi.org/10.1016/j.nrl.2012.06.008
Ezeugwu, V., & Manns, P. (2017). Sleep duration, sedentary behavior, physical activity, and quality of life after inpatient stroke rehabilitation. Journal of Stroke and Cerebrovascular Diseases, 26(9), 2004-2012, http://dx.doi.org/ 10.1016/j.jstrokecerebrovasdis.2017.06.009
GBD 2016 Stroke Collaborators. (2019). Global, regional, and national burden of stroke, 1990-2016: a systematic analysis for the Global Burden of Disease Study 2016. The Lancet. Neurology, 18(5), 439-458. https://doi.org/10.1016/S1474-4422(19)30034-1
Gillard, P. J., Sucharew, H., Kleindorfer, D., Belagaje, S., Varon, S., Alwell, K., Moomaw, C., Woo, D., Khatri, P., Flaherty, M., Adeoye, O., Ferioli, S., & Kissela, B. (2015). The negative impact of spasticity on the health-related quality of life of stroke survivors: A longitudinal cohort study. Health and Quality of Life Outcomes, 30 (1), 18-24 http://dx.doi.org/10.1186/s12955-015-0340-3
González-Gómez, F., Pérez-Torre, P., DeFelipe, A., Vera, R., Matute, C., Cruz-Culebras, A., Álvarez-Velasco, R., & Masjuan, J. (2016). Stroke in young adults: Incidence rate, risk factors, treatment and prognosis. Revista Clínica Española., 216(7), 345-351. http://dx.doi.org/10.1016/j.rce.2016.05.008
Gramstad, A., Aarsland, D., & Naess, H. (2011). Cognitive profile of elderly patients with mild stroke. Dementia and Geriatric Cognitive Disorders Extra., 1(1), 409-417 http://dx.doi.org/10.1159/000331675
Haghgoo, H., Pazuki, E., & Hosseini, A. & Rassafiani, M. (2013). Activities of daily living and quality of life in patients with stroke. Journal of the Neurological Sciences, 328, (1–2), 87-91. http://dx.doi.org/10.1016/j.jns.2013.02.027
Hobart, J., Williams, L., Moran, K., & Thompson, A. (2002). Quality of life measurement after stroke uses and abuses of the SF-36. Stroke, 33, 1348-1356. http://dx.doi.org/10.1161/01.STR.0000015030.59594.B3
Hohmann, C., Radziwill, R., Klotz, J. M., & Jacobs, A. H. (2010). Health-related quality of life after ischemic stroke: The impact of pharmaceutical interventions on drug therapy (pharmaceutical care concept). Health and Quality of Life Outcomes, 8(59), 1-7. http://dx.doi.org/10.1186/1477-7525-8-59
Huang, Y.H., Wu, C.Y., Lin, K.C., Hsieh, Y.W., Snow, W.M., & Wang, T.N. (2013). Determinants of change in stroke-specific quality of life after distributed constraint-induced therapy. American Journal of Occupational Therapy, 67(1), 54-63. http://dx.doi.org/10.5014/ajot.2013.004820
Jaracz, K., Grabowska-Fudala, B., Górna, K., & Kozubski, W. (2014). Consequences of stroke in the light of objective and subjective indices: a review of recent literature. Neurologia i Neurochirurgia Polska, 48(4):280-286. http://dx.doi.org/10.1016/j.pjnns.2014.07.004
Jönsson, A.N., Delavaran, H., Iwarsson, S., Ståhl, A., Norrving, B., & Lindgren, A. (2014). Functional status and patient-reported outcome 10 years after stroke: the lund stroke register. Stroke, 45(6), 1784-1790. http://dx.doi.org/10.1161/STROKEAHA.114.005164
Karube, N., Sasaki, A., Hondoh, F., Odagiri, C., Hagii, J., Seino, S., Yasujima, M., & Osanai, T. (2016). Quality of life in physical and psychological health and social environment at posthospitalization period in patients with stroke. Journal of Stroke and Cerebrovascular Diseases, 25(10), 2482-2487. http://dx.doi.org/10.1016/j.jstrokecerebrovasdis.2016.06.022
Khalid, W., Rozi, S., Tazeen, S. A., Azam, I., Mullen, M. T., Illyas, S., Un-Nisa, Q., Soomro, N., & Kamal, A. K. (2016). Quality of life after stroke in pakistan. BMC Neurology, 16, 250. http://dx.doi.org/10.1186/s12883-016-0774-1
Kim, S. Y., Kim, J. M., Stewart, R., Kang, H. J., Kim, S. W., Shin, I. S., Park, M. S., Cho, K. H., & Yoon, J. S. (2013). Influences of personality traits on quality of life after stroke. European Neurology, 69(3), 185-92. http://dx.doi.org/10.1159/000345699
Kim, W. H., Jung, H. Y., Choi, H. Y., Park, C. H., Kim, E. S., Lee, S. J., Ko, S. H., Kim, S. Y., & Joa, K. L. (2017). The associations between insomnia and health-related quality of life in rehabilitation units at 1month after stroke. Journal of Psychosomatic Research, 96, 10-14 http://dx.doi.org/10.1016/j.jpsychores.2017.02.008
Krančiukaitė, D & Rastenytė, D. (2006). Measurement of quality of life in stroke patients. Medicina (Kaunas); 42(9), 709-716. http://medicina.lsmuni.lt/med/0609/0609-03e.htm
Leno, C., Holguín, M., Hidalgo, N., Rodriguez-Ramos, M., & Lavado, J. (2016). Calidad de vida relacionada con la salud en personas sobrevivientes a un ictus a largo plazo. Revista Científica de la Sociedad Española de Enfermería Neurológica, 44, 9-15 https://doi.org/10.1016/j.sedene.2015.12.002
López-Bastida, J., Oliva Moreno, J., Worbes Cerezo, M., Perestelo Perez, L., Serrano-Aguilar, P., & Montón-Álvarez, F. (2012). Social and economic costs and health-related quality of life in stroke survivors in the Canary Islands, Spain. BMC Health Services Research, 12, 315. https://doi.org/10.1186/1472-6963-12-315
McDonnell, M. N., Mackintosh, S. F., Hillier, S. L., & Bryan, J. (2014). Regular group exercise is associated with improved mood but not quality of life following stroke. Peer J, 27(2), 1-10. http://dx.doi.org/10.7717/peerj.331
Mesa, Y., Hernández, T., & Parada, Y. (2017). Factores determinantes de la calidad de vida en pacientes sobrevivientes a un ictus. Revista Habanera de Ciencias Médicas, 16(5), 735-750. http://scielo.sld.cu/pdf/rhcm/v16n5/rhcm07517.pdf
Mitchell, A., Kemp, S., Benito‐León, J., & Reuber, M. (2010). The influence of cognitive impairment on health‐related quality of life in neurological disease. Acta Neuropsychiatrica, 22, 2–13. https://doi.org/10.1111/j.1601-5215.2009.00439.x
Peña-Pitarch, E., & Tico-Falguera, N. (2012). Assessment of damage in affected persons with neurological sequelae. Trauma Fund MAPFRE, 23 (4), 247-252. http://www.mapfre.com/fundacion/html/revistas/trauma/v23n4/docs/Articulo8.pdf
Persson, J., Levin, L., Holmegaard, L., Redfors, P., Jood, K., Jern, C., Blomstrand, C., & Forsberg-Warleby, G. (2017). Stroke survivors long-term QALY-weights in relation to their spouses QALY-weights and informal support: A cross-sectional study. Health and Quality of Life Outcomes, 15, 150. https://doi.org/10.1186/s12955-017-0724-7
Pickard, S., Johnson, J.A., Penn, A., Lau, F., & Noseworthy, T. (1999). Replicability of SF-36 summary scores by the SF-12 in stroke patients. Stroke 30(6), 1213-1217. https://doi.org/10.1161/01.STR.30.6.1213
Pinedo, S., Sanmartín, V., Zaldibar, B., Erazo, P., Miranda, M., Tejada, P., Lizarraga, N., Aycart, J., Gamio, A., & Bilbao, A. (2016). Calidad de vida a los 6 meses tras un ictus. Rehabilitación, 50(1), 5-12, https://doi.org/10.1016/j.rh.2015.08.002
Pons, S., Delgado, V., Oliva, M., Tamayo, Y., & González, J. (2018). Apreciación de la calidad de vida en el adulto mayor. Revista Médica Granma, 22(1), 39-50. http://www.revmultimed.sld.cu/index.php/mtm/article/view/777/1105
Proquest. (2020). Proquest libguides. https://proquest.libguides.com/hamcollection
Rachpukdee, S., Howteerakul, N., Suwannapong, N., Tang-Aroonsin, S. (2013). Quality of Life of Stroke Survivors: A 3-Month Follow-up Study. Journal of Stroke and Cerebrovascular Diseases, the official journal of National Stroke Association, 22(7), e70-e78 https://doi.org/10.1016/j.jstrokecerebrovasdis.2012.05.005
Raju, R., & Krishnan, G. (2015). Adaptation and validation of stroke-aphasia quality of life (SAQOL-39) scale to Malayalam. Annals of Indian Academy of Neurology, 18(4), 441–444. http://doi.org/10.4103/0972-2327.160068
Robles, A., Rubio, B., De La Rosa, E., Vanessa, E., & Nava, A. (2016). Generalidades y conceptos de calidad de vida en relación con los cuidados de salud. El Residente, 11(3), 120-125. http://www.medigraphic.com/pdfs/residente/rr-2016/rr163d.pdf
Sarfo, F.S., Jenkins, C., Singh, A., Owolabi, M., Ojagbemi, A., Adusei, N., Saulson, R., & Ovbiagele, B. (2017). Post-stroke depression in Ghana: Characteristics and correlates. Journal of the Neurological Sciences, 379, 261–265. https://doi.org/10.1016/j.jns.2017.06.032
Schöttke, H., & Giabbiconi, C. M. (2015). Post-stroke depression and post-stroke anxiety: prevalence and predictors. International Psychogeriatrics, 27(11):1805-1812. https://doi.org/10.1017/S1041610215000988
Soriano, A.P., Coarasa, A., Reigada, P., Solano, V. (2013). Empleo de la escala de calidad de vida para el ictus (ECVI-38) para cuantificar y medir las consecuencias de un ictus. Relación con variables demográficas y clínicas. Rehabilitación (Madr), 47(4), 213-222, https://doi.org/10.1016/j.rh.2013.06.001.
Tang, W.K., Lau, C.G., Mok, V., Ungvari, G.S., & Wong, K.S. (2013). , Impact of Anxiety on Health-Related Quality of Life After Stroke: A Cross-Sectional Study. Archives of Physical Medicine and Rehabilitation, 47(4), 213-222. https://doi.org/10.1016/j.rh.2013.06.001
Tang, W.K., Lau, C.G., Mok, V., Ungvari, G.S., & Wong, K.S. (2014). Apathy and health-related quality of life in stroke. Archives of Physical Medicine and Rehabilitation, 95(5), 857-861, https://doi.org/10.1016/j.apmr.2013.10.012.
The World Health Organization Quality of Life Assessment (WHOQOL): development and general psychometric properties. (1998). Social Science & Medicine (1982), 46(12), 1569–1585. https://doi.org/10.1016/s0277-9536(98)00009-4
Theeke, L.A., Lucke-Wold, A. N., Mallow, J.A., & Horstman, P. (2017). Life after stroke in Appalachia. International Journal of Nursing Sciences, 4, 105-111 https://doi.org/10.1016/j.ijnss.2017.02.005
Tran, P. L., Leigh Blizzard, C., Srikanth, V., Hanh, V. T., Lien, N.T., Thang, N.H., & Gall, S. L. (2015). Health-related quality of life after stroke: Reliability and validity of the duke health profile for use in Vietnam. Quality of Life Research, 24(11), 2807-2814.
https://doi.org/10.1007/s11136-015-1016-5
Urzúa, A. (2010). Calidad de vida relacionada con la salud: Elementos conceptuales. Revista Médica de Chile, 138(3), 358-365. https://doi.org/10.4067/S0034-98872010000300017
Urzúa, MA., & Caqueo-Urízar, A. (2012). Calidad de vida: una revisión teórica del concepto. Terapia psicológica., 30(1), 61-71. https://doi.org/10.4067/S0718-48082012000100006
Van Mierlo, M.L., van Heugten, C.M., Post, M., de Kort, P., & Visser-Meily, J. (2015). Life satisfaction post stroke: The role of illness cognitions. Journal of Psychosomatic Research, 79, 137-142. https://doi.org/10.1016/j.jpsychores.2015.05.007
Wu, X., Min, L., Cong, L., Jia, Y., Liu, C., Zhao, H., Liu, P., & Luo, Y. (2014). Sex differences in health-related quality of life among adult stroke patients in Northeastern China. Journal of Clinical Neuroscience, 21(6), 957-961. https://doi.org/10.1016/j.jocn.2013.08.030
Este trabalho está licenciado sob uma licença Creative Commons Attribution-NonCommercial 4.0 International License.
Copyright (c) 2020 Elsa Fernanda Siabato Macias, Gloria Johanna Montaña Mogollón