Palabras clave
parenting
autism spectrum disorder
literature review
Cómo citar
Resumen
El trastorno del espectro autista (TEA) es una enfermedad cuyas características diagnósticas exigen un cambio importante en la vida cotidiana y en la dinámica familiar. Incorporar a los padres o cuidadores al tratamiento y garantizar su bienestar, por tanto, cobra importancia para el desarrollo de la persona con TEA. Un constructo que se asocia a estas cuestiones es la autoeficacia parental. Así, el objetivo del presente estudio es identificar estudios con el tema "autoeficacia parental en el contexto del TEA" y los instrumentos psicométricos utilizados y caracterizarlos. Para ello, se realizó una revisión bibliográfica con estudios indexados en las bases de datos PubMed, PsycINFO, Web of Sciences y Revistas CAPES que abordaran el tema y que utilizaran un instrumento psicométrico para evaluar la autoeficacia. Se realizó el análisis bibliométrico de los datos y el análisis de contenido categorial temático. Los resultados apuntan a tres focos temáticos en el análisis de la autoeficacia parental en el contexto de los TEA con constructos relacionados con la cognición parental como principales variables relacionadas con la misma. La mayoría de los instrumentos utilizados para la evaluación están relacionados con la autoeficacia parental en el contexto general, identificándose sólo dos instrumentos específicos para el TEA. Se enfatiza la necesidad de realizar más estudios en el área y de contar con instrumentos específicos para el TEA.
Citas
American Psychiatric Association [APA] (Ed.). (2014). Manual Diagnóstico e Estatístico de Transtornos Mentais—DSM-5 (5o ed). Artmed.
Avrech Bar, M., Shelef, L., & Bart, O. (2016). Do participation and self-efficacy of mothers to children with ASD predict their children’s participation? Research in Autism Spectrum Disorders, 24, 1–10. https://doi.org/10.1016/j.rasd.2016.01.002
Bandura, A. (1977). Self-efficacy: Toward a unifying theory of behavioral change. Psychological Review, 84(2), 191–215. https://doi.org/10.1037/0033-295X.84.2.191
Bandura, A. (1997). Self-efficacy: The Exercise of Control. W.H. Freeman and Company.
Bardin, L. (1977). Análise de Conteúdo. Edições 70.
Benson, P. (2016). The Longitudinal Effects of Network Characteristics on the Mental Health of Mothers of Children with ASD: The Mediating Role of Parent Cognitions. Journal of Autism and Developmental Disorders, 46. https://doi.org/10.1007/s10803-016-2699-3
Benson, P. R., & Kersh, J. (2011). Marital quality and psychological adjustment among mothers of children with ASD: Cross-sectional and longitudinal relationships. Journal of Autism and Developmental Disorders, 41(12), 1675–1685. https://doi.org/10.1007/s10803-011-1198-9
Burke, M., & Heller, T. (2016). Individual, parent, and social-environmental correlates of caregiving experiences among parents of adults with autism spectrum disorder: Caregiving for adults with ASD. Journal of Intellectual Disability Research, 60(5), 401–411. https://doi.org/10.1111/jir.12271
Çattık, M., & Aksoy, V. (2018). An Examination of the Relations among Social Support, Self-Efficacy, and Life Satisfaction in Parents of Children with Developmental Disabilities. TED EĞİTİM VE BİLİM, 43. https://doi.org/10.15390/EB.2018.7246
Christensen, D. L., Braun, K. V. N., Baio, J., Bilder, D., Charles, J., Constantino, J. N., Daniels, J., Durkin, M. S., Fitzgerald, R. T., Kurzius-Spencer, M., Lee, L.-C., Pettygrove, S., Robinson, C., Schulz, E., Wells, C., Wingate, M. S., Zahorodny, W., & Yeargin-Allsopp, M. (2018). Prevalence and Characteristics of Autism Spectrum Disorder Among Children Aged 8 Years—Autism and Developmental Disabilities Monitoring Network, 11 Sites, United States, 2012. Morbidity and Mortality Weekly Report. Surveillance Summaries (Washington, D.C.: 2002), 65(13), 1–23. https://doi.org/10.15585/mmwr.ss6513a1
Coleman, P. K., & Karraker, K. H. (1998). Self-Efficacy and Parenting Quality: Findings and Future Applications. Developmental Review, 18(1), 47–85. https://doi.org/10.1006/drev.1997.0448
Conti, R. (2015). Compassionate Parenting as a Key to Satisfaction, Efficacy and Meaning Among Mothers of Children with Autism. Journal of Autism and Developmental Disorders, 45(7), 2008–2018. https://doi.org/10.1007/s10803-015-2360-6
Costa e Silva, M. R. V., Roama-Alves, R., & Ciasca, S. (2022) Parenting Self-Efficacy Scale for Autism Spectrum Disorder: Evidence of Content Validity. Psychology, 13, 514-531. https://doi.org/10.4236/psych.2022.134034
Dai, Y. G., Brennan, L., Como, A., Hughes-Lika, J., Dumont-Mathieu, T., Carcani-Rathwell, I., Minxhozi, O., Aliaj, B., & Fein, D. A. (2018). A video parent-training program for families of children with autism spectrum disorder in Albania. Research in Autism Spectrum Disorders, 56, 36–49. https://doi.org/10.1016/j.rasd.2018.08.008
Dunn, W., Cox, J., Foster, L., Mische-Lawson, L., & Tanquary, J. (2012). Impact of a contextual intervention on child participation and parent competence among children with autism spectrum disorders: A pretest-posttest repeated-measures design. The American Journal of Occupational Therapy: Official Publication of the American Occupational Therapy Association, 66(5), 520–528. https://doi.org/10.5014/ajot.2012.004119
Dias, I. S. (2010). Competências em educação: Conceito e significado pedagógico. Psicologia Escolar e Educacional, 14(1), 73–78. https://doi.org/10.1590/S1413-85572010000100008
Fávero, M. A. B., & Santos, M. A. dos. (2005). Autismo infantil e estresse familiar: Uma revisão sistemática da literatura. Psicologia: Reflexão e Crítica, 18(3), 358–369. https://doi.org/10.1590/S0102-79722005000300010
Favero-Nunes, M. A., & Santos, M. A. dos. (2010). Itinerário terapêutico percorrido por mães de crianças com transtorno autístico. Psicologia: Reflexão e Crítica, 23(2), 208–221. https://doi.org/10.1590/S0102-79722010000200003
Fleury, M. T. L., & Fleury, A. (2001). Construindo o conceito de competência. Revista de Administração Contemporânea, 5(spe), 183–196. https://doi.org/10.1590/S1415-65552001000500010
García-López, C., Sarriá, E., & Pozo, P. (2016). Parental Self-Efficacy and Positive Contributions Regarding Autism Spectrum Condition: An Actor–Partner Interdependence Model. Journal of Autism and Developmental Disorders, 46(7), 2385–2398. https://doi.org/10.1007/s10803-016-2771-z
Giallo, R., Wood, C. E., Jellett, R., & Porter, R. (2013). Fatigue, wellbeing and parental self-efficacy in mothers of children with an autism spectrum disorder. Autism: The International Journal of Research and Practice, 17(4), 465–480. https://doi.org/10.1177/1362361311416830
Hastings, R. P., & Brown, T. (2002). Behavior problems of children with autism, parental self-efficacy, and mental health. American Journal of Mental Retardation: AJMR, 107(3), 222–232. https://doi.org/10.1352/0895-8017(2002)107<0222:BPOCWA>2.0.CO;2
Johnston, C., & Mash, E. J. (1989). A Measure of Parenting Satisfaction and Efficacy. Journal of Clinical Child Psychology, 18(2), 167–175. https://doi.org/10.1207/s15374424jccp1802_8
Karst, J. S., Van Hecke, A. V., Carson, A. M., Stevens, S., Schohl, K., & Dolan, B. (2015). Parent and family outcomes of PEERS: A social skills intervention for adolescents with autism spectrum disorder. Journal of Autism and Developmental Disorders, 45(3), 752–765. https://doi.org/10.1007/s10803-014-2231-6
Kuhn, J. C., & Carter, A. S. (2006). Maternal self-efficacy and associated parenting cognitions among mothers of children with autism. The American Journal of Orthopsychiatry, 76(4), 564–575. https://doi.org/10.1037/0002-9432.76.4.564
Kuperstein, A. L., Biazus, F. C., & Pires, L. C. V. C. (2018). A família como parte importante da equipe do diagnóstico à intervenção precoce da criança com transtorno do espectro autista. In: Rotta, N. T., Bridi Filho, C. A., & Bridi, F. R. S. (Orgs.). Plasticidade cerebral e aprendizagem: abordagem mustidisciplinar. Artmed.
Lambert, M. J., Whipple, J. L., Smart, D. W., Vermeersch, D. A., Nielsen, S. L., & Hawkins, E. J. (2001). The effects of providing therapists with feedback on patient progress during psychotherapy: are outcomes enhances? Psychotherapy Research, 11(1), 49-68. https://doi.org/10.1080/713663852
Launeanu, M. S. (2016). Response Processes as a Source of Validity Evidence in Self-Report Measures: Theoretical and Methodological Implications [Doctoral Thesis]. University of British Columbia.
Lindsey, R. A., & Barry, T. D. (2018). Protective Factors Against Distress for Caregivers of a Child with Autism Spectrum Disorder. Journal of Autism and Developmental Disorders, 48(4), 1092–1107. https://doi.org/10.1007/s10803-017-3372-1
Maruish, M. E. (2014). The use of psychological testing for treatment planning and outcomes assessment (3rd Ed). Routledge.
Matthews, N. L., Orr, B. C., Harris, B., McIntosh, R., Openden, D., & Smith, C. J. (2018). Parent and child outcomes of JumpStartTM, an education and training program for parents of children with autism spectrum disorder. Research in Autism Spectrum Disorders, 56, 21-35. https://doi.org/10.1016/J.RASD.2018.08.009
May, C., Fletcher, R., Dempsey, I., & Newman, L. (2015). Modeling Relations among Coparenting Quality, Autism-Specific Parenting Self-Efficacy, and Parenting Stress in Mothers and Fathers of Children with ASD. Parenting: Science and Practice, 15, 119–133. https://doi.org/10.1080/15295192.2015.1020145
Miranda, A., Mira, A., Berenguer, C., Rosello, B., & Baixauli, I. (2019). Parenting Stress in Mothers of Children With Autism Without Intellectual Disability. Mediation of Behavioral Problems and Coping Strategies. Frontiers in Psychology, 10, 464. https://doi.org/10.3389/fpsyg.2019.00464
Pinto, R. N. M., Torquato, I. M. B., Collet, N., Reichert, A. P. da S., Souza Neto, V. L. de, Saraiva, A. M., Pinto, R. N. M., Torquato, I. M. B., Collet, N., Reichert, A. P. da S., Souza Neto, V. L. de, & Saraiva, A. M. (2016). Autismo infantil: Impacto do diagnóstico e repercussões nas relações familiares. Revista Gaúcha de Enfermagem, 37(3). https://doi.org/10.1590/1983-1447.2016.03.61572
Rezendes, D. L., & Scarpa, A. (2011). Associations between Parental Anxiety/Depression and Child Behavior Problems Related to Autism Spectrum Disorders: The Roles of Parenting Stress and Parenting Self-Efficacy. Autism Research and Treatment, 2011, 395190. https://doi.org/10.1155/2011/395190
Salagame, D. K. K. (2010). Effect of Sensitized Coaching on Self-Efficacy of Parents of Children with Autism. Journal of Developmental Disabilities, 16(2), 44–51. https://oadd.org/wp-_JoDD_content/uploads/2010/01/4107_JoDD_16-2_44-51_RajSalagame_v9f.pdf
Schmidt, C., & Bosa, C. (2007). Estresse e auto-eficácia em mães de pessoas com autismo. Arquivos Brasileiros de Psicologia, 59(2), 179–191. http://pepsic.bvsalud.org/pdf/arbp/v59n2/v59n2a08.pdf
Schrott, B., Kasperzack, D., Weber, L., Becker, K., Burghardt, R., & Kamp-Becker, I. (2019). Effectiveness of the Stepping Stones Triple P Group Parenting Program as an Additional Intervention in the Treatment of Autism Spectrum Disorders: Effects on Parenting Variables. Journal of Autism and Developmental Disorders, 49(3), 913–923. https://doi.org/10.1007/s10803-018-3764-x
Semensato, M. R., & Bosa, C. A. (2013). A família das crianças com autismo: Contribuições empíricas e clínicas. In C. Schmidt (Ed.), Autismo, educação e transdisciplinaridade (pp. 81-103). Papirus.
Semensato, M. R., & Bosa, C. A. (2017). Crenças Indicativas de Resiliência Parental no Contexto do Autismo. Psicologia: Teoria e Pesquisa, 33. https://doi.org/10.1590/0102.3772e33416
Seymour, M., Giallo, R., & Wood, C. E. (2017). Bio-ecological factors associated with the psychological distress of fathers of children with autism spectrum disorder: A population-based study of Australian families. Autism, 22(7), 825-836. https://doi.org/10.1177/1362361317709971
Shiri, E., Pouretemad, H., Fathabadi, J., & Narimani, M. (2019). A pilot study of family-based management of behavioral excesses in young Iranian children with autism spectrum disorder. Asian Journal of Psychiatry, 47, 101845. https://doi.org/10.1016/j.ajp.2019.101845
Singh, N. N., Curtis, W. J., Ellis, C. R., Nicholson, M. W., Villani, T. M., & Wechsler, H. A. (1995). Psychometric Analysis of the Family Empowerment Scale. Journal of Emotional and Behavioral Disorders, 3(2), 85–91. https://doi.org/10.1177/106342669500300203
Silva, R. A., & Magalhães, C. M. C. (2011). Crenças sobre práticas: Estudo sobre mães primíparas de contexto urbano e não-urbano. Journal of Human Growth and Development, 21(1), 39–50. http://pepsic.bvsalud.org/pdf/rbcdh/v21n1/05.pdf
Sofronoff, K., & Farbotko, M. (2002). The effectiveness of parent management training to increase self-efficacy in parents of children with Asperger syndrome. Autism: The International Journal of Research and Practice, 6(3), 271–286. https://doi.org/10.1177/1362361302006003005
Solish, A., & Perry, A. (2008). Parents’ involvement in their children’s behavioral intervention programs: Parent and therapist perspectives. Research in Autism Spectrum Disorders, 2(4), 728–738. https://doi.org/10.1016/j.rasd.2008.03.001
Sprovieri, M. H. S., & Assumpção Jr, F. B. (2001). Dinâmica familiar de crianças autistas. Arquivos de Neuro-Psiquiatria, 59(2A), 230–237. https://doi.org/10.1590/S0004-282X2001000200016
Tabaquim, M. de L. M., Vieira, R. G. de S., Razera, A. P. R., & Ciasca, S. M. (2015). Autoeficácia de cuidadores de crianças com o transtorno do espectro autista. Revista Psicopedagogia, 32(99), 285–292. http://pepsic.bvsalud.org/pdf/psicoped/v32n99/02.pdf
Weiss, J. A., Robinson, S., Fung, S., Tint, A., Chalmers, P., & Lunsky, Y. (2013). Family hardiness, social support, and self-efficacy in mothers of individuals with Autism Spectrum Disorders. Research in Autism Spectrum Disorders, 7(11), 1310–1317. https://doi.org/10.1016/j.rasd.2013.07.016
Weiss, J. A., Tint, A., Paquette-Smith, M., & Lunsky, Y. (2016). Perceived self-efficacy in parents of adolescents and adults with autism spectrum disorder. Autism: The International Journal of Research and Practice, 20(4), 425–434. https://doi.org/10.1177/1362361315586292
Zhou, Y., Yin, H., Wang, M., & Wang, J. (2019). The effect of family-focused psychoeducational therapy for autism spectrum disorder children’s parents on parenting self-efficacy and emotion. Archives of Psychiatric Nursing, 33(1), 17–22. https://doi.org/10.1016/j.apnu.2018.08.002
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